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Count Me In

Optimizing participant and community engagement in cancer genomic sequencing research.

Crossnohere NL, Schuster ALR, Blair CK, et al. Optimizing participant and community engagement in cancer genomic sequencing research. Genetics in medicine : official journal of the American College of Medical Genetics. 2025;27(9):101483. doi:10.1016/j.gim.2025.101483

Supporting Participant Engagement in Cancer Genomics Research in Rare Cancers: A Qualitative Study of Patients, Caregivers, and Advocates.

Venkataraman V, Weber L, Fisher L, et al. Supporting Participant Engagement in Cancer Genomics Research in Rare Cancers: A Qualitative Study of Patients, Caregivers, and Advocates. Cancer control : journal of the Moffitt Cancer Center. 2025;32:10732748251364041. doi:10.1177/10732748251364041

Count Me In: patient-partnered research to address disparities for rare cancer patients.

Bhakhri P, Phelps K, Zañudo JGT, et al. Count Me In: patient-partnered research to address disparities for rare cancer patients. Therapeutic advances in rare disease. 2024;5:26330040241304440. doi:10.1177/26330040241304440

Overcoming Systemic Barriers to Make Patient-Partnered Research a Reality.

Venkataraman V, Martin-Giacalone BA, Drake BF, et al. Overcoming Systemic Barriers to Make Patient-Partnered Research a Reality. Journal of clinical oncology : official journal of the American Society of Clinical Oncology. 2024;42(34):4018-4022. doi:10.1200/JCO.24.00347

Priorities to Promote Participant Engagement in the Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network.

Schuster AL, Crossnohere NL, Bachini M, et al. Priorities to Promote Participant Engagement in the Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network. Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology. 2023;32(4):487-495. doi:10.1158/1055-9965.EPI-22-0356

A patient-driven clinicogenomic partnership for metastatic prostate cancer.

Crowdis J, Balch S, Sterlin L, et al. A patient-driven clinicogenomic partnership for metastatic prostate cancer. Cell genomics. 2022;2(9). doi:10.1016/j.xgen.2022.100169

A Framework for Promoting Diversity, Equity, and Inclusion in Genetics and Genomics Research.

Rebbeck TR, Bridges JFP, Mack JW, et al. A Framework for Promoting Diversity, Equity, and Inclusion in Genetics and Genomics Research. JAMA health forum. 2022;3(4). doi:10.1001/jamahealthforum.2022.0603

Prevalence and mutational determinants of high tumor mutation burden in breast cancer.

Barroso-Sousa R, Jain E, Cohen O, et al. Prevalence and mutational determinants of high tumor mutation burden in breast cancer. Ann Oncol. 2020;31(3):387-394. doi:10.1016/j.annonc.2019.11.010

The Angiosarcoma Project: enabling genomic and clinical discoveries in a rare cancer through patient-partnered research.

Painter CA, Jain E, Tomson BN, et al. The Angiosarcoma Project: enabling genomic and clinical discoveries in a rare cancer through patient-partnered research. Nat Med. 2020;26(2):181-187. doi:10.1038/s41591-019-0749-z